tag:blogger.com,1999:blog-338581633491322703.post7865668502438131070..comments2023-05-09T06:00:19.599-04:00Comments on Autistic Hoya — A blog by Lydia X. Z. Brown (2011-2020): Georgetown: Say No to Autism SpeaksLydia Brownhttp://www.blogger.com/profile/13484063914873791571noreply@blogger.comBlogger110125tag:blogger.com,1999:blog-338581633491322703.post-91950365118965045142017-03-05T12:30:04.421-05:002017-03-05T12:30:04.421-05:00Hi I don't mean to but in but I am autistic I ...Hi I don't mean to but in but I am autistic I was diagnosed when I was in 5th grade and I received help through a therapist and other means. I know there is a lot of controversy revolving around behavioral therapy but I would not label it as such. I find myself looking at people aiming to cure autism like trying to cure my brown eyes I know it may be a bit reductive but I feel if a society 18jadehttps://www.blogger.com/profile/06807763283359318085noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-45913496565396678622017-02-05T21:55:53.749-05:002017-02-05T21:55:53.749-05:00Oh, really Shadytail, scientifically, THERE IS NO ...Oh, really Shadytail, scientifically, THERE IS NO POSSIBLE CURE, autism is a genetic condition. The "cure" that Autism Speaks has been funding is systematic screening followed by abortions of all unborn children with autism that they can get their hands on.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-19005812154128082262016-01-04T11:12:31.035-05:002016-01-04T11:12:31.035-05:00agreed! i've said that the only autism-related...agreed! i've said that the only autism-related reason i "suffer" is that current society is not "designed" with autistic people (or any disabled people really) in mind, due to ableism and disability erasure. and especially due to A$. (it should be accessible though, and though people are taking steps to improve it, it isn't there yet.)<br />- "mid-functioning"Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-4983264033734684682015-09-29T06:23:11.809-04:002015-09-29T06:23:11.809-04:00You don't want a cure? Fine. Don't get one...You don't want a cure? Fine. Don't get one. But don't take that away from the people who DO. Don't take that away from the people who desperately need the cure, who can't function without it, whose lives are being ruined by this disease, who have no friends, who have no future, who are pathetic. And before you ask, no, I am not the parent of an autistic child who's mad Shadyhttps://www.blogger.com/profile/15897488811503441471noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-32166257196584756542015-06-04T13:18:24.462-04:002015-06-04T13:18:24.462-04:00No one should have to give a reason as to why not ...No one should have to give a reason as to why not wanting to be changed. It's a basic right as long as no danger to self or others. You don't want to walk, then it's a right to stay in a wheelchair. <br /><br />There are negative things that can come with autism that are often desirable to be tempered at least because they are harmful to self and others. Some of those attributes Anonymoushttps://www.blogger.com/profile/07636670946994161261noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-84659412699569285832015-04-02T22:55:10.589-04:002015-04-02T22:55:10.589-04:00"When I donate money to Autism Speaks - and I..."When I donate money to Autism Speaks - and I do, by the thousands - I do so because I want research."<br /><br />If research is truly your goal, why Autism Speaks and not SFARI? They back halfway decent research without peddling the stigma and dehumanization.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-41232006460469964532015-04-02T17:33:54.721-04:002015-04-02T17:33:54.721-04:00They don't claim to be for "Family Servic...They don't claim to be for "Family Services."<br /><br />When I donate money to Autism Speaks - and I do, by the thousands - I do so because I want research. <br /><br />As I talk to friends who have to bathe their 30-year-old sons... as I listen to them as they cry because their children have never been able to communicate let alone have a friend... as they talk about the health Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-28775020572364235922014-06-18T11:37:44.648-04:002014-06-18T11:37:44.648-04:00Lydia, that is exactly what I was thinking. The OP...Lydia, that is exactly what I was thinking. The OP was simply saying he or she doesn't want to be seen as "separate" and all the negative things that implies. It is in no way anti-medication. I, too, am Bipolar. But I've been properly medicated for about 4 years now and I'm doing well. I'm a new mom and my marriage is incredible. I speak out when people use "bipolarAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-58604435502433821382014-06-08T21:02:17.166-04:002014-06-08T21:02:17.166-04:00Autism Speaks would have you believe that its only...<i>Autism Speaks would have you believe that its only opponents are "misguided high-functioning people." That is not true.</i><br />I agree. As a low functioning Autie, I too despise and oppose Autism Squeaks'.<br />@ Alicia: I feel sorry for you. While I understand your motives in joining in with the Autism Squeaks walks, the fact is that they rake in loads of money from people Sheogorathhttps://archiveofourown.org/users/sheogorathnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-41987045744949270432014-06-08T09:41:08.975-04:002014-06-08T09:41:08.975-04:00You have been brainwashed by an ableist society in...You have been brainwashed by an ableist society in believing that autism is a completely negative thing that needs be cured. You have been brainwashed by organizations who only focus on the negative aspects of autism. In reality, many autistic people enjoy certain aspects of their autism and even sees them as advantageous. Yes, my autism makes certain things hard for me, but what I need is love, Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-67728180281138536932014-06-08T09:21:43.275-04:002014-06-08T09:21:43.275-04:00Ignorance/ableism is strong in the comments.Ignorance/ableism is strong in the comments.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-18974295261833715402014-04-08T17:23:20.175-04:002014-04-08T17:23:20.175-04:00I understand a lot of your complaints against this...I understand a lot of your complaints against this organization. But why wouldn't you want to be cured? I struggle with depression and OCD and GOD I would give anything to NOT have to deal with that, and it's not even as intense as some people deal with.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-37910026610864374882014-04-03T05:13:21.351-04:002014-04-03T05:13:21.351-04:00I received this comment today but accidentally cli...I received this comment today but accidentally clicked the delete button. Here it is:<br /><br />Anonymous has left a new comment on your post "Georgetown: Say No to Autism Speaks": <br /><br />@Alicia, I, too, am bipolar, and I have to agree with the other anonymous. I could not be happier that lithium (well, don't bless its side effects) stabilizes my mood, but I still have a Lydia X. Z. Brownhttps://www.blogger.com/profile/04500253664516894122noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-73302729631308922642014-03-23T09:25:46.067-04:002014-03-23T09:25:46.067-04:00Just going to argue with one of your points here: ...Just going to argue with one of your points here: you said that the two videos were taken down. True, but the organization has never apologized for them. If you hurt someone's feelings, it's not enough to just stop saying the words; you need to actually say "I'm sorry, I know what I did was wrong" and say kind words. When I see Autism Speaks apologizing for everything they&#Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-60665819025394607492014-03-10T23:16:02.742-04:002014-03-10T23:16:02.742-04:00In addition, you repeatedly refer to autistic peop...In addition, you repeatedly refer to autistic people as having the minds of toddlers, saying "No one disputes that having a young child who throws tantrums, wears diapers and doesn't sleep through the night is stressful on parents. For many with autistic children, that is a reality that will be with them for the rest of the child's life." and "the neurodiversity movement Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-63392797420045124342014-02-03T18:07:05.503-05:002014-02-03T18:07:05.503-05:00Except the problem is that only 4% of their budget...Except the problem is that only 4% of their budget goes towards "family services" in the first place.<br /><br />They're also considered to be financially irresponsible. http://smallswingshoes.tumblr.com/post/66981246454#notesAnonymoushttps://www.blogger.com/profile/00163000501621154912noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-91845002696506230062014-02-03T18:06:25.286-05:002014-02-03T18:06:25.286-05:00Except most of what they do has little to do with ...Except most of what they do has little to do with that. Only 4% of their budget goes toward "family services."<br /><br />It's also considered financially irresponsible based on their spending. http://smallswingshoes.tumblr.com/post/66981246454#notesAnonymoushttps://www.blogger.com/profile/00163000501621154912noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-2244188277834947242013-10-01T19:35:34.886-04:002013-10-01T19:35:34.886-04:00I read Flowers for Algernon in Advanced English to...I read Flowers for Algernon in Advanced English today. It reminded me of why I don't want a cure.Anonymoushttps://www.blogger.com/profile/10616282351291824392noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-71021665002502290682013-01-09T05:08:17.768-05:002013-01-09T05:08:17.768-05:00I have no particularly close connection with anyon...I have no particularly close connection with anyone with autism, but the TV spots for Autism Speaks have always bothered me. I saw one again while battling insomnia tonight/this morning, and finally took the time to google the phrase "autism speaks misleading statistics". I think this blog entry is right on the mark, and it matches my own feelings as a person with epilepsy toward the just passing thrunoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-74120797189745473642012-12-05T08:25:44.217-05:002012-12-05T08:25:44.217-05:00It are the associated disorders which are the prob...It are the associated disorders which are the problem (depression, social fears, attention deficides, tendecies to OCD, etc.). At least for me.autisticneuroscientisthttps://www.blogger.com/profile/00302965833487288291noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-52911008237006684792012-09-17T17:13:29.073-04:002012-09-17T17:13:29.073-04:00YEAH, BUDDY! TELL THEM MOFOZ OFF!!!!
YEAH, BUDDY! TELL THEM MOFOZ OFF!!!! <br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-32737509302650672612012-07-11T02:03:48.558-04:002012-07-11T02:03:48.558-04:00@Lydia, I have been unable to publish a response t...@Lydia, I have been unable to publish a response to Voyra Yarow, in the responding to autism speaks article that you authored, as she references my child in that response, in a disrespectful manner that I do not appreciate, in trust that it is the internet site that is the problem and I am not being censored for offering a different point of view, so I am providing that response here, in case it Anonymous1noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-3862614859812966072012-07-10T18:34:53.926-04:002012-07-10T18:34:53.926-04:00As far as information provided on the Autism Speak...As far as information provided on the Autism Speaks Website your argument isn't with autism speaks it is with the DSM organization and Government CDC organzation as the Autism Speaks organization provides third party information on autism generated by the criteria provided by those organizations , just as is the case with most other autism awareness efforts provide on the internet.<br /><br /Anonymous1noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-24008363551221400992012-07-10T08:38:24.377-04:002012-07-10T08:38:24.377-04:00Just call me Anonymous 3.14159...
Here's one ...Just call me Anonymous 3.14159...<br /><br />Here's one person's anecdotes to support her opinion that Autism Speaks "awareness campaigns" are harmful to adult autistics.<br /><br />In 2010, I tried to get employment services from the local Voc Rehab office and my counselor said she would not accept my autism diagnosis--because my my symptoms didn't match what she read aboutAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-31202814903130619532012-07-10T01:59:45.460-04:002012-07-10T01:59:45.460-04:00Thanks, I just sent another updated email to ASAN,...Thanks, I just sent another updated email to ASAN, since I have become aware of more apparent injustices on that fact sheet since the last email, and politely asked for a response; I am still interested in your personal opinion on the representation of the facts associated on that fact sheet that do not appear to be fair criticism based on the fact that the organization endorses ASA, meeting or Anonymous1noreply@blogger.com