tag:blogger.com,1999:blog-338581633491322703.post6234982295979389470..comments2023-05-09T06:00:19.599-04:00Comments on Autistic Hoya — A blog by Lydia X. Z. Brown (2011-2020): Protesting Autism SpeaksLydia Brownhttp://www.blogger.com/profile/13484063914873791571noreply@blogger.comBlogger52125tag:blogger.com,1999:blog-338581633491322703.post-42986565104075042932014-06-15T01:01:48.576-04:002014-06-15T01:01:48.576-04:00The real problem isn't the specific opinions e...The real problem isn't the specific opinions expressed as much as the volume of people who hold them. As a protester, you're at an event whose target demographic is the most ignorant and ableist people around. With that in mind, it's no surprise that so many people at the event are apathetic or actively bigoted. Knowing what's coming doesn't always make the experience easier, DanYellowhttps://www.blogger.com/profile/16980471287660890566noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-21072308200858165732013-12-31T11:43:28.277-05:002013-12-31T11:43:28.277-05:00I am behind you 100%. I wish I could have been th...I am behind you 100%. I wish I could have been there protesting with you. We have events here where local businesses take collections for Autism Speaks. When they ask me, I tell them I'm on the autism spectrum, and I do not support Autism Speaks. They never want to know why. Anonymoushttps://www.blogger.com/profile/14263308985881102579noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-14385398914212793042013-12-31T11:41:22.244-05:002013-12-31T11:41:22.244-05:00I am behind you 100%. I wish I could have been th...I am behind you 100%. I wish I could have been there protesting with you. Anonymoushttps://www.blogger.com/profile/14263308985881102579noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-86029374968008244522013-12-31T11:26:35.833-05:002013-12-31T11:26:35.833-05:00I would suggest to the writer that instead of feel...I would suggest to the writer that instead of feeling sorry for your nephew, learn to speak his language. Communication is so much more extensive than what NT people think it is. If you truly make an effort to do so, you might understand the implications of everything you just said. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-23127162398884712002013-12-31T11:17:31.041-05:002013-12-31T11:17:31.041-05:00When a group takes a name like Autism Speaks, that...When a group takes a name like Autism Speaks, that group has an incredible responsibility. The implication is that you are speaking for Autistic People. If Autism Speaks is not listening to the adult autistic community (All of them-including the people they dismiss because they are so called high functioning) and Autistic people are not represented on their boards, then maybe they should go with Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-16885711002469208332012-12-07T19:53:09.478-05:002012-12-07T19:53:09.478-05:00Definitely a mistake on my part, that I'm not ...Definitely a mistake on my part, that I'm not going to be able to blame the spell checker for.:). Another convenience of life, where one can afford to lose a little more attention to detail. Overall, that's a good thing for me.:).Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-23755010290261132652012-12-01T04:49:49.460-05:002012-12-01T04:49:49.460-05:00This might be a spellcheck goof, but "pallet&...This might be a spellcheck goof, but "pallet" is a flat wooden thing used in warehouses, and "palate" is the roof of the mouth.BiolArtisthttps://www.blogger.com/profile/16330367623093253412noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-83337966449115687572012-11-16T03:41:29.735-05:002012-11-16T03:41:29.735-05:00http://www.thehoya.com/news/autism-advocates-demon...http://www.thehoya.com/news/autism-advocates-demonstrate-for-rights-1.2945568#.UKX4gmeGFal<br /><br />The Autism Rights Watch, another organization run by people on the spectrum, for inclusion of all people on the spectrum, with a global outreach effort, comments on this protest, in the link above, deploring the ongoing fights between ASAN and Autism Speaks. <br /><br />This organization is Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-90348339541573555512012-11-15T13:37:53.958-05:002012-11-15T13:37:53.958-05:00"Obviously, the writer and the autistic peopl..."Obviously, the writer and the autistic people represented in these comments are on the high end of the spectrum and sound like brilliant, amazing people. You are going to university, you will lead high functioning lives with jobs."<br /><br />Have you seriously not gotten the memo that you can't tell *anything* else about a person's life by how well they write blog posts on theAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-85119431446926850882012-11-14T20:45:08.425-05:002012-11-14T20:45:08.425-05:00If cure was really the issue, in the argument, the...If cure was really the issue, in the argument, the focus would likely be addressed on 96% of the research dollars toward the general goal of a cure in the US, not the 4% autism speaks provides. If a Prenatal test was actually the issue the focus would likely be on the five year UC Davis study and the five year Australian study that is actually funded by the government and sources in Australia Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-36259974769263682272012-11-14T14:12:41.121-05:002012-11-14T14:12:41.121-05:00Obviously, the writer and the autistic people repr...Obviously, the writer and the autistic people represented in these comments are on the high end of the spectrum and sound like brilliant, amazing people. You are going to university, you will lead high functioning lives with jobs. Your parents likely don't have to worry about how you will be cared for after they die. I'm scratching my head at how you equate 'finding a cure' Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-22311656546329232642012-11-14T03:29:10.015-05:002012-11-14T03:29:10.015-05:00http://blog.autismspeaks.org/2011/04/26/ido-kedar-...http://blog.autismspeaks.org/2011/04/26/ido-kedar-speech/<br /><br />People without a verbal voice on the spectrum are provided opportunities to speak by Autism Speaks. Those voices are worth sharing, regardless of who provides those opportunities.:).Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-2693139158075521282012-11-14T01:36:25.915-05:002012-11-14T01:36:25.915-05:00gots them! and shared oxgots them! and shared oxHannahhttps://www.blogger.com/profile/08819262159652755479noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-4614981062763793582012-11-12T14:52:49.398-05:002012-11-12T14:52:49.398-05:00Autism Speaks in the link you provided, quoted bel...Autism Speaks in the link you provided, quoted below, did not state they were funding research for a prenatal test for Autism. They discussed the difficulties for such a test to be developed, the fact that it was years away from development, if achievable, and hoped to accomplish it to temper developmental abnormalities. The organization decided not to fund a prenatal test, and as evidenced at Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-35443216088094908552012-11-12T02:31:28.057-05:002012-11-12T02:31:28.057-05:00All they would have to do is say "___________...All they would have to do is say "___________ is autistic." No one's going to ask them to post their diagnostic report on the web.<br /><br />And I've shown you proof they did fund pre-natal screening research in the past as late as 2010.<br /><br />Your condescending tone is very triggering to me though, so I'm getting out of this discussion.Quentinhttp://likeicouldnttakeyou.tumblr.comnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-72371856144474695102012-11-10T15:24:29.912-05:002012-11-10T15:24:29.912-05:00Part 2 of comment above:
John Elder Robison makes...Part 2 of comment above:<br /><br />John Elder Robison makes contributions to the scientific advisory board, and he is listened to. His area of expertise is not marketing or public relations, nor is that a usual area of expertise among folks actually diagnosed on the spectrum, for obvious reasons. It is part of the reason why different ways of thinking for charitable organizations are a Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-73513682326993660082012-11-10T15:19:24.023-05:002012-11-10T15:19:24.023-05:00No I clearly stated that Autism Speaks was not fun...No I clearly stated that Autism Speaks was not funding prenatal testing, they made that clear in the official interview they provided, and it is also clear on all the historical documented research projects, on their website, as well as their restrictions for research for the current year, documented on their website.<br /><br />Autism Speaks is not the largest private non-profit organization Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-4194899990317296592012-11-10T14:16:21.175-05:002012-11-10T14:16:21.175-05:00"We've got one" makes me want to cry..."We've got one" makes me want to cry. Like an autistic child/relative/friend is a <i>belonging</i>, a thing to have, rather than a person with their own mind and motivations. You "have" your token autistic person, so you can ignore all the rest. Hell, you probably ignore "yours" too.Leahhttps://www.blogger.com/profile/18090719135675632824noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-21465961793476711832012-11-10T12:55:14.801-05:002012-11-10T12:55:14.801-05:00hi,
am so greatful for getting in there and protes...hi,<br />am so greatful for getting in there and protesting their BS,thanks so much for putting the effort into it and not taking any BS!<br /><br />am in the UK and we dont have any autism organisations like them but have dealt with many a autism speaks supporter on their original/very first forum!<br /><br />most of them are autism ignorant and have not got a clue what autism is outside of Emhttps://www.blogger.com/profile/09891694757392785085noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-62964416282088304672012-11-10T02:03:33.196-05:002012-11-10T02:03:33.196-05:00"Autism Speaks has very little impact on thos..."Autism Speaks has very little impact on those dollars, as they only funded 18 million dollars in 2010, per reports from the Interagency Autism Coordinating Committee. The Simons foundation funded three times as much at 53 million dollars, and other smaller organizations at 2 million dollars."<br /><br />So, you're admitting AS gives money to pre-natal testing? And it's funny Quentinhttp://likeicouldnttakeyou.tumblr.comnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-61615561357200862842012-11-09T22:52:10.480-05:002012-11-09T22:52:10.480-05:00I apologize, I made a mistake in my response above...I apologize, I made a mistake in my response above, I remembered incorrectly on the person that made that comment; it was John Elder Robison, who while he agrees with the definition of cure that Autism Speaks uses per remediation of disability, he does not agree with the usage of the particular phrase, "curing autism", and does not agree with Autism Speaks continued usage of the phrase.Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-43144586598808812112012-11-09T21:07:06.733-05:002012-11-09T21:07:06.733-05:00That was not an Autism Speaks organizational respo...That was not an Autism Speaks organizational response, that you quoted, that was a general response from a person in the discussion in that thread, that I provided to the link, from a father of a child with regressive autism.<br /><br />Autism Speaks was talking about the potential of the development of a prenatal test years in the future, in the link you provided, but they decided not to fund Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-12872879283110494432012-11-09T20:22:46.851-05:002012-11-09T20:22:46.851-05:00Chavisory I agree with you there, as while there m...Chavisory I agree with you there, as while there may be 2 million people visiting autism speaks website and 450,000 visiting their website, that walked in the walks and other volunteer events in 2011, reported on their IRS form 990, for a full definition of what they mean by cure; that is about .6% of the population. <br /><br />Among the rest of the 99% of people that might see the word cure, Katie Mia Frederickhttps://www.blogger.com/profile/01336627766755378406noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-83129629300323321322012-11-09T19:58:30.177-05:002012-11-09T19:58:30.177-05:00Thanks Lydia and co. for making a principled stand...Thanks Lydia and co. for making a principled stand and trying to educate people about Autism Speaks. Autism Speaks definitely does NOT speak for me, or the many many other autistic people I know.<br /><br />I do not want to be 'cured' and I really feel sorry for anyone who does want to be. I especially feel very sad for all those whose parents want them to be cured. What an awful startTaranoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-14957340921872750862012-11-09T19:19:46.544-05:002012-11-09T19:19:46.544-05:00When someone donates a dollar, 4 cents of that dol...When someone donates a dollar, 4 cents of that dollar goes to family services. That IS very little, in the scheme of their donations. Two million is a lot to me, certainly, but it's very little in the scheme of the Autism Speaks budget. "Very little" is an incredibly relative term, but with respect to the entire AS budget, yes - the money going to family services is very little.<Quentinhttp://likeicouldnttakeyou.tumblr.comnoreply@blogger.com