tag:blogger.com,1999:blog-338581633491322703.post1555710355674504017..comments2023-05-09T06:00:19.599-04:00Comments on Autistic Hoya — A blog by Lydia X. Z. Brown (2011-2020): Literal SilencingLydia Brownhttp://www.blogger.com/profile/13484063914873791571noreply@blogger.comBlogger41125tag:blogger.com,1999:blog-338581633491322703.post-50557565289939054882016-07-23T21:52:19.310-04:002016-07-23T21:52:19.310-04:00I like to know what Kade perspective on this is? D...I like to know what Kade perspective on this is? Does he like the affects? I think his perspective most important. I know when I have maltdown and I scream it hurts. Like my whole body hurts. I wonder if he was hurting when he screamed because tics. People I meant that have tics say they can hurt. I like to know how he feelings. We don't know if he was in great pain and just could not expressAnonymoushttps://www.blogger.com/profile/08235298972494092036noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-33007610103950229052014-09-01T16:12:49.388-04:002014-09-01T16:12:49.388-04:00Um debarking completely removes an animals' vo...Um debarking completely removes an animals' voicebox and is irreversible. What Kade had done is reversible and only lowered his voice, it did not remove it. When he's 18 if he decides he wants to scream like a banshee and damage his throat until he can't even USE it anymore then by all means he can make that decision. I can assure you though he won't.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-39083499303763875262014-02-13T22:57:35.653-05:002014-02-13T22:57:35.653-05:00http://www.youtube.com/watch?v=CHqSniu1sZAhttp://www.youtube.com/watch?v=CHqSniu1sZAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-17722792766774045342014-01-09T18:30:47.897-05:002014-01-09T18:30:47.897-05:00I like your way with words - reminds me of Porpent...I like your way with words - reminds me of PorpentineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-86746774164889631752013-10-04T18:55:54.355-04:002013-10-04T18:55:54.355-04:00There are medications for tourettes syndrome but a...There are medications for tourettes syndrome but all of those are coincedentally partially effective meds that only work for some. It's not a guarantee for everyone. It sounds like they did try to use them. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-69980621055323896262013-10-04T18:53:00.646-04:002013-10-04T18:53:00.646-04:00That's the problem. While his screaming could ...That's the problem. While his screaming could have been a tic only Kade can really know if he can stop it. as a tourettic I can partially justify the surgery as screaming tics can be so incredibly damaging and quieting them actually has the possibility of improving the function of his voice. (I know this from experience (natural waxing and waning of tics not through surgery) However, we don&#Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-7839539640864595072013-10-04T18:49:51.225-04:002013-10-04T18:49:51.225-04:00tourettes syndrome changes the treatment protocol ...tourettes syndrome changes the treatment protocol for such screaming. Tics are not under the control of the induvicual and though they may worsen with stress or other factors they are not conciouslly used as communication. However, as anything can be a tic what is a tic for someone may not be a tic for another. Only Kade can really tell us if it's a tic or not, and therefore the nonconsensualAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-50303159502312858172013-10-04T18:34:16.669-04:002013-10-04T18:34:16.669-04:00In addition, let me assure you that i have had voc...In addition, let me assure you that i have had vocal tics (coughing ones and breathing ones) that at one count happened over 10,000 times a day. 2,000 times is terribly possible. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-50525612725680632072013-10-04T18:33:00.086-04:002013-10-04T18:33:00.086-04:00As a person with tourettes and severe (not as seve...As a person with tourettes and severe (not as severe as this thank goodness) screaming tics let me just assure you, they can make life HELL! When mine are bad I regularily lose my voice for days on end, and my throat is rarely ever not sore. I am not autistic, and therefore I can not comment on the accessibility of such behavioral interventions as CBIT (comprehensive behavioral intervention for Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-85216832923500008862013-10-03T14:20:20.805-04:002013-10-03T14:20:20.805-04:00I fail to understand how the potential absence of ...I fail to understand how the potential absence of Tourette's mitigates the fact that Crystal's child screams loudly 2000 times per day. She lives with this behavior, yet she can see that surgical silencing is wrong. If she won't make excuses for this procedure, maybe you shouldn't, either.Chris DeLorenzohttps://www.blogger.com/profile/12156301259264407210noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-47830288410111557932013-09-29T12:05:28.965-04:002013-09-29T12:05:28.965-04:00Does your child also have Tourette's Syndrome ...Does your child also have Tourette's Syndrome like Kade? Also, the Salon article mentions that they only came to the surgeon after trying various therapies and medications. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-49373737689052360252013-09-29T07:09:32.590-04:002013-09-29T07:09:32.590-04:00If he is high functioning enough to talk then he i...If he is high functioning enough to talk then he is high functioning enough to understand the concept of surgery, surgery is not an abstract concept. <br /><br />In any case, I believe there are medications for tourette's syndrome, they should have at least attempted to use those before the idea of surgery ever came into consideration, which they don't seem to have done. Anonymoushttps://www.blogger.com/profile/08820475652498158320noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-64618681107620922432013-09-28T14:09:06.454-04:002013-09-28T14:09:06.454-04:001. My post did not go through because I was not pr...1. My post did not go through because I was not properly logged on.<br />2. I am a 22-year-old College student with High Functioning Autism and other things. I also know some wonderful people who have Tourrette's Syndrome.<br />3. I agree with CS. This surgery had more benefits than drawbacks. It is also supposedly reversible when the boy's Tics become less severe. Furthermore, Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-7033044490035579572013-09-28T13:53:25.266-04:002013-09-28T13:53:25.266-04:001. I agree with you CS, this surgery, performed 3 ...1. I agree with you CS, this surgery, performed 3 years ago on a boy who was 14 years old at the time had much more benefits than drawbacks. Also, regardless of disability, 14-year-olds who were not medically emancipated do not have much say in the matter of their health-care.<br />2. I think that some people here accusing those who agree with the surgery of being monsters are themselves Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-33579335610893850622013-09-28T01:23:09.543-04:002013-09-28T01:23:09.543-04:00"Many autistic children have great difficulit..."Many autistic children have great difficulity grasping abstract ideas and could not make this decision for themselves."<br /><br />Disgusting. Positively revolting. Autistic people aren't competent enough to protest when our throats are penetrated by surgeons' knives? By your logic, our objections to anything could be written off as "just our autism talking." Chris DeLorenzohttps://www.blogger.com/profile/12156301259264407210noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-59341998884367877422013-09-28T01:16:28.727-04:002013-09-28T01:16:28.727-04:001) Have you been through nonconsensual medical car...1) Have you been through nonconsensual medical care? If not, please don't try to define torture to the exclusion of those who have. If there's any question as to whether some forms of that could be torture, it's a legal one (e.g., the necessity of state action as part of the definition) and not one based in the facts.<br /><br />2) I'm at best skeptical of the claim that this Anonymoushttps://www.blogger.com/profile/07331145210782053830noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-36263203327414816332013-09-28T01:10:37.221-04:002013-09-28T01:10:37.221-04:00"Many autistic children have great difficulit..."Many autistic children have great difficulity grasping abstract ideas and could not make this decision for themselves." <br /><br />Disgusting. Autistic people can't tell when their bodily autonomy is being violated? We're not competent enough to protest when our throats are penetrated by surgeons' knies? By your logic, any objection we make to anything could be writtenChris DeLorenzohttps://www.blogger.com/profile/12156301259264407210noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-7654223420620171482013-09-28T00:56:56.264-04:002013-09-28T00:56:56.264-04:00As someone who is autistic and has been around a l...As someone who is autistic and has been around a lot of autistic people (growing up and now as an adult), I will say that people should be taking a harder look at how others treat autistic people - ESPECIALLY parents, educators and providers. Do you have any idea how high the number of autistics with post-traumatic stress disorder, or just a plain extensive trauma history, is? And it's not Anonymoushttps://www.blogger.com/profile/07331145210782053830noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-30975952421576612932013-09-28T00:19:50.570-04:002013-09-28T00:19:50.570-04:00I read both the Wisconsin journal article Lydia li...I read both the Wisconsin journal article Lydia links and the Salon article about this story. http://www.salon.com/2013/09/27/is_surgically_altering_an_autistic_boys_voice_cruel_or_kind/singleton/<br /><br />The Wisconsin State Journal's article is pure shock journalism meant to push a curist agenda. Notice the TACA (Talk About Curing Autism) link in the upper left. I knew I was reading offratheruniquehttps://www.blogger.com/profile/16658832012531012427noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-6972896831679788522013-09-28T00:09:21.190-04:002013-09-28T00:09:21.190-04:00Someone should seriously make several complaints t...Someone should seriously make several complaints to the state of Wisconsin to try to get his medical licence stripped away.Jessica Sidewayshttps://www.blogger.com/profile/08220569563720973358noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-5389309109350150932013-09-28T00:07:57.928-04:002013-09-28T00:07:57.928-04:00well. I just lost my comment, but I will try refor...well. I just lost my comment, but I will try reformulate what I feel we have to take away from this. Devocalisation or 'debarking' surgery is considered unethical and has been made illegal in many countries in Europe. For dogs and cats, that is. But this is the same intervention. Some are pointing, of course, to the fact that the screams were seen as tics, part of the comorbidity Tourettenikkihttp://suburpcomix.wordpress.com/noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-64481856265689107552013-09-27T23:58:02.107-04:002013-09-27T23:58:02.107-04:00Where did you not read what the original author wr...Where did you not read what the original author wrote? She said "If screaming was a conflicting access need, there are other ways to address the issue than forced surgery." That means figuring out how to accommodate everyone involved. Yeah, duh, the autistic brother with the sound sensitivity has the access need of needing to not be around sound like screaming, but the answer to that isKathrijn S.noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-5857192647011848322013-09-27T23:56:40.008-04:002013-09-27T23:56:40.008-04:00I also have a degree in special education and I wo...I also have a degree in special education and I work with children like this every day and not one of the parents has ever even thought of doing anything like this everAnonymoushttps://www.blogger.com/profile/00013625419001615180noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-28988098306763182282013-09-27T23:51:29.281-04:002013-09-27T23:51:29.281-04:00Um, the parents' version is the only version t...Um, the parents' version is the only version told in both that academic article and the original news story. The parents ALWAYS have their story told. Like, always. Do you even read, asshole?Kathrijn S.noreply@blogger.comtag:blogger.com,1999:blog-338581633491322703.post-91055031575048027902013-09-27T23:47:54.630-04:002013-09-27T23:47:54.630-04:00My child also screams on average of 2000 times per...My child also screams on average of 2000 times per day.. at the same 'damaging' levels ... and sleeps for 10. He sees an ENT regularly and has never had a problem with pain or swelling or anything. He had his tonsils and adenoids removed for obstructive sleep apnea years ago and has been screaming since with no side effects. It has decreased rapidly with proper therapy and parenting. Ive Anonymoushttps://www.blogger.com/profile/00013625419001615180noreply@blogger.com