28 December 2011

"People First - Create an Environment of Respect"

That was the subject line of an email I received in response to the Chris Baker petition. But the email and my response to it speak far louder than any commentary I could make here.

Trigger warning: Hostility, ableism, and all that fun stuff.



Original email:


Lydia,

I respect and will eventually support your cause via Change.org. However I cannot in good consciousness sign such a disrespectful petition.

In the past "People First Language" has been the greatest of movements and arches into our modern day understanding of ALL people.


In your petition you continuously mention that Chris is "...an Autistic Student". This implies that Chris is Autistic, rather than Chris has Autism. By perpetuating this exclusive language, you and others are singling out Chris. He is a person first. No more and no less than you or I.

The correct usage would be to say: In Mercer County, Kentucky, nine year old Chris Baker has autism [or a diagnosis of ...], was told..

"complete extensive education regarding respectful treatment of Autistic students"

I applaud your consideration and concern for the teacher. The need to educate that person and in fact the entire school aboutstudents who have Autism or that may be diagnosed with Autism Spectrum disorders is admirable.

Kind Regards,

[Name redacted]
Advocate for People and Families Living with Brain Injury


My response:


Dear [name redacted],

Thank you for writing. While I appreciate your concerns and the reasons behind them, I respectfully disagree with your conclusions, especially as written in such a disrespectful email, and I am speaking to you as an Autistic person. I am Autistic, and that is how I identify myself. I, like the majority of Autistic adults and youth, intentionally do not use person first language to refer to ourselves or others who are also Autistic. The Blind and Deaf communities, like the Autistic community, have come to the same conclusion, with the majority of their and our constituencies choosing to use the proper adjective or noun in place of person first language.

We are aware that the majority of other disability groups or communities, including the traumatic brain injury community, prefer to use person first language, and the default for most of us is to defer to the majority consensus of the people with that disability or disabled in that particular way. For example, in reference to intellectual disability, the prevailing majority consensus among that community is to say "person with an intellectual disability," and so in reference to a person with intellectual disability, we will typically defer to that language; however, in reference to autism, the majority of adults and youth on the autism spectrum prefer to say "Autistic person," and so in reference to a person on the autism spectrum, we will typically say "Autistic person." The exception is for the minority of adults and youth who explicitly prefer to be identified as "persons with autism," and in reference to those specific individuals, that language will be used.

In this respect, the language that I have chosen -- which I have done so very intentionally and thoughtfully -- is the most respectful language that I can use, because it defers to the majority consensus of the population so described. When very well-meaning and well-intentioned advocates and members of the community writ large such as yourself insist that we use certain language to describe ourselves against our own stated and explicitly argued wishes, you are essentially telling us what offends us. I, and many others in the community of Autistic adults and youth, do defer to the majority consensus of any disability group when referring to people from those respective disability groups, because that is following the wishes of the constituency so described. I ask respectfully that you do the same in reference to us.

Jim Sinclair, one of the first Autistic people to extend the principles of the disability rights movement to the Autistic community, wrote a seminal essay in 1999 entitled "Why I dislike 'person first' language," which you can read at this link (or here: http://www.cafemom.com/journals/read/436505/). Since then, a number of Autistic people of all levels of visible or invisible disability, have written similar essays, including myself. I have personally written two essays that articulate all of the reasons why I do not ascribe to person-first language, one republished at the Thinking Person's Guide to Autism among other locations, and the other located at my own blog, on the topic. The first is called "Person-First Language: Why It Matters (The Significance of Semantics)" (or http://thinkingautismguide.blogspot.com/2011/11/person-first-language-why-it-matters.html) and the second is called "Identity and Hypocrisy: A Second Argument Against Person-First Language" (or http://autistichoya.blogspot.com/2011/11/identity-and-hypocrisy-second-argument.html).

Lea Ramsdell, writing about identify politics, asserts that "[l]anguage is identity and identity is political." The majority of us who are Autistic and who prefer to be identified as Autistic people do so because being Autistic is as much a part of our individual identities as being American, Christian, or Asian are for me. I do not refer to myself as a person with Americanness, Christianess, or Asianness, and thus I am not a person with Autism either. It is not an inherently good or bad thing to be American, Christian, or Asian, nor is it an inherently good or bad thing to be Autistic. It is simply a part of my identity. Autism is not something from which I can or ought to be separated.

You yourself write "He [Chris] is a person first. No more and no less than you or I." which to me is only a further representation of why person-first language cannot and should not be applied to person first language [sic: should say "autism"]. Use of person first language implies that there is some additional need to verbally recognize the humanity of the person so described, as if by him or herself, he or she does not quite qualify for personhood. Why can I say that I am American or that I am Christian or that I am Asian and do so without fear of being called insensitive or disrespectful to other people who could be described that way? Because we have in our society come to terms with accepting those labels as identity labels, and that people who can be described with those labels are inherently people. We have not yet done that with autism, although recognizing that a person is Autistic ought simply to be recognition of that person's humanity -- as an Autistic person.

Elesia Ashkenazy, also an Autistic and Deaf person, wrote a petition on Change.org explaining very briefly some of the reasons why we do not ascribe to the use of person-first language (http://www.change.org/petitions/understand-autism-first-language), that you may also find to be of interest to yourself. I think a quote from my own essay (the first one linked) summarizes it well.

Yet, when we say "Autistic person," we recognize, affirm, and validate an individual's identity as an Autistic person. We recognize the value and worth of that individual as an Autistic person -- that being Autistic is not a condition absolutely irreconcilable with regarding people as inherently valuable and worth something. We affirm the individual's potential to grow and mature, to overcome challenges and disability, and to live a meaningful life as an Autistic. Ultimately, we are accepting that the individual is different from non-Autistic people -- and that that's not a tragedy, and we are showing that we are not afraid or ashamed to recognize that difference.

Stating that I am Christian or American or Asian recognizes that I am different from Muslims or Atheists, Egyptians or Koreans, or Africans or Europeans. It does not mean I am lesser because I am not the latter category. It does not mean I am less human -- or more human. These are descriptor labels of identity. We understand the word Autistic or phrase "Autistic person" in the same way. It is an identity label, and one that may be more or less important to specific individuals whom it describes (as labels like Christian or American or Asian may be more or less important to specific individuals whom they describe), but it is an accurate and honest means of describing my identity. I am Autistic.

Thus, while I thank you for your time in sharing your thoughts with me, I must share why I have come to the opposite conclusion firmly and resolutely, having read and understood the reasoning behind use of person-first language in reference to autism, and being myself an Autistic person or a person who is Autistic. If you can, please take the time to explore the links that I have shared with you, as those articles provide additional information about why the majority of Autistic adults and youth prefer to identify as Autistic rather than "persons with autism." If you sincerely wish to engage in respectful dialogue with and about Autistic people -- and I believe that you do -- then please take into consideration that those of us who are Autistic have the right to determine what we consider to be respectful language.


Blessings and peace,
Lydia


______________

Lydia Brown
[contact information redacted]

Do you know an Autistic student preparing for or attending college or university? The Autistic Self Advocacy Network has announced the publication of Navigating College: A Handbook on Self Advocacy Written for Autistic Students from Autistic Adults. For more information, visit the Navigating College website, or to order a print copy, visit the University of New Hampshire Institute on Disability bookstore.

"Evil is not the absence of righteousness but of empathy."
— Mohsin Hamid

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
— Albert Einstein

This message is intended for the designated recipient(s) only. It may contain confidential information or be subject to confidentiality protections. If you are not a designated recipient, you may not review, copy, or distribute this message or any attachments. If you have received this message in error, please notify the sender by reply e-mail and immediately destroy this message and any attachments. Do not retain, copy, or use this e-mail or any attachment for any purpose, nor disclose any part of the contents to any other person by any means.

09 December 2011

When the Educational System Fails

UPDATE: 21 Dec. 2011: Jenny Holcomb, Emily's mother, announced a successful result from mediation with school officials this Monday, due in no small part to the political pressure from the over 1,100 signatures on the petition.

UPDATE: 13 Dec. 2011: You can view the full signatures list as of 1:20pm EST (6:20pm GMT) here!

UPDATE: 11 Dec. 2011: I have written and posted a petition to Change.org demanding serious changes be made in the next year in Marion County to prevent this kind of abuse. Please sign and share!

UPDATE: 10 Dec. 2011: Jenny Holcomb, Emily's mother, announced that the charges have been dropped. The fight isn't over yet, though; Jenny still needs to meet with school officials in mediation to demand appropriate services and education for Emily.



WHEN THE EDUCATIONAL SYSTEM FAILS

...again. This time, it's Hamilton High School in Marion County, Alabama. A little after this October, Emily Holcomb, fourteen year old non-speaking Autistic student, was ordered out of school after school officials had the district attorney's office file first degree assault (a felony) charges against Emily for "hitting" and "shoving" her teacher, apparently causing a "minor injury" -- really, open-handed swipes and trying to push away from a woman (the teacher) who had physically restrained her for fifty-five minutes. Fifty-five minutes. Fifty-five...

That's abuse.

And now the school, after having negotiated an individualized education plan (IEP) including the services of a full-time aide specializing in autism, has decided that criminal charges are the way to go. Yes, that's right. Criminal charges. Go ahead and read the news story here if you find this to be too bizarrely incredulous.

Now, Zakhqurey Price, does anyone remember that name? He was an Autistic fifth grader in 2009 charged with assault when, after calming down from a meltdown, his teachers decided to corner and restrain him, and he (predictably) lashed out.

Why do school systems feel the need to criminalize autism? This blog tends to focus on issue and philosophy centered articles related to autism and advocacy, but this horrific, tragic turns of events is only more evidence of the deeply-rooted systemic problems in the way our country looks at differently-abled or disabled people, especially Autistic people. And something needs to be done. And something can be done -- by you and I, sitting here and reading this post. In fact, I've already created a Facebook group where you can read about the case and see updates.

But for now, what can you actually do to help? You can write, email, or call the school's superintendent who filed the complaint, the district attorney of Marion County, and the deputy district attorney who seems to be handling the case, asking them to drop the case and any charges. Emily needs help, and she needs help now. This isn't some fancy theorizing or overly intellectual model of some idea -- this is the life of an actual person whom someone is trying to destroy.

Demand that the school request the District Attorney's office drop all charges. Demand that the District Attorney's office refuse to prosecute the case. Remember to be polite and respectful. Explain that restraining Autistic people for fifty-five minutes is abuse. Explain that slapping outward is a defensive mechanism, not a violent act. Explain that Autistic children need caring, encouraging teachers who respect them, NOT criminal charges.

Mr. Ryan Hollingsworth
Superintendent, Marion County Board of Education
Marion County Schools
188 Winchester Drive, Hamilton, AL 35570-6626
(205) 921-3191 office
(205) 921-7336 fax
ryanh@mcbe.net

Jack Bostick
District Attorney
Marion County Alabama Courthouse
132 Military Street S, Hamilton, AL 35570
Phone: 205-921-7403

Paige Nichols Vick
25th Judicial Circuit
District Attorney's Office
PO Box 1596, Hamilton, AL 35570 1596
Phone: 205-921-7403

Tips for Letters and Phone Calls
  • Beginning of letter, introduce yourself (name, city and state) and your connection to autism (if any), as well as any organizational affiliations or professional credentials.
  • If a phone call, ask politely for "Mr." or "Ms." [name].
  • Be respectful, using proper greetings and forms of address, even if you think the subject(s) deserve(s) no respect.
  • Be polite, as this always adds power to your words. Polite here meaning writing in such a way where you do not intend to offend or insult.
  • Use proper grammar, spelling, capitalization, and punctuation. This adds professionalism.
  • Be succinct. Don't write a ten page novel. The subject will not read it. Guaranteed.
  • Be personal, if you have a personal story or connection. Make sure the subject knows why you care.
  • Be firm. You know you are in the right.
  • Explain why this is wrong. Tell the subject why it is wrong to criminally charge an Autistic person for an action that wasn't malicious, intended to be harmful, or offensive (meaning unprovoked).
  • Demand that charges be dropped immediately.
  • Conclude by thanking the subject for his or her time and consideration.
  • Sign with a professional greeting in a letter.
  • Include your full name, city and state, and address (home or work) at the top of the letterhead or beneath your signature in a letter.

And please, pass on this link. The more voices are heard, united behind Emily against the people who somehow think it's appropriate to criminally charge an Autistic person reacting defensively to people who were essentially abusing her, the larger and greater the possibility we can actually effect change. Yes, actual change. Strangers on the internet have that power; now it is time to exercise it.